tag:blogger.com,1999:blog-9102103.post113133481969161944..comments2023-12-22T03:51:16.223-05:00Comments on Big Monkey, Helpy Chalk: The Doctor of the Future?Rob Helpy-Chalkhttp://www.blogger.com/profile/13814390262154687969noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-9102103.post-4150232281478076192009-01-05T20:14:00.000-05:002009-01-05T20:14:00.000-05:00Wow, as a Beachy Amish Mennonite mother of a child...Wow, as a Beachy Amish Mennonite mother of a child with rare eosinophilic gastroenteropathy and inoperable brain cancer, I found your post to be quite harsh in regards to the Amish and their children in general. I have to agree with Kendra. While you probably had no intent to write with such a slant, it most definitely came across that way. I hope you never have to walk a mile or 10 in our shoes. A little kindness goes a long way.Sherryhttps://www.blogger.com/profile/12172266756715886161noreply@blogger.comtag:blogger.com,1999:blog-9102103.post-11369554767474552252007-01-07T09:43:00.000-05:002007-01-07T09:43:00.000-05:00I apologize if my comments were offensive or uncle...I apologize if my comments were offensive or unclear. Glutaric aciduria Type 1 is the disease that is affecting the Amish. Pretzel syndrome affects other groups.<br /><br />My goal in the post was not to in any way demean those who are suffering, but to warn about the dangers of overhyping genetic treatments. Geneticists like Dr. Morton have accomplished a great deal of good, but we should be wary of claims to "revolutionize medicine"Rob Helpy-Chalkhttps://www.blogger.com/profile/13814390262154687969noreply@blogger.comtag:blogger.com,1999:blog-9102103.post-68098464310211740272007-01-07T00:30:00.000-05:002007-01-07T00:30:00.000-05:00As a mother to one of the children diagnosed with ...As a mother to one of the children diagnosed with pretzel syndrome...we are not amish. So far none of the children diagnosed are amish . We are mennonites. I find your comments about our dear children very rude . We searched years for answers that no doctors could give us. Dr Morton has given us answers and also we are now in contact with other parents who also have children like ours. KendraAnonymousnoreply@blogger.com